A pilot examine goals to fill a giant hole in migraine information by figuring out probably the most environment friendly option to seize its prevalence, burden, and remedy gaps within the Australian neighborhood.
The AHEAD (Australian Headache Epidemiology Knowledge) pilot examine, supported by grants from Mind Basis, Lundbeck, and Prince of Wales Hospital Basis, will examine migraine and treatment overuse headache as a precursor to the primary Australia-wide examine of migraine prevalence and administration.
These residing with migraine know it’s greater than only a headache. It significantly impacts folks’s high quality of life and productiveness. But till now, complete migraine information has not been collected in Australia, regardless of the intense impact it has on so many lives. Based mostly on worldwide research, an estimated 4.9 million Australians dwell with migraine.
Native information is urgently wanted to precisely characterise the extent of this main public well being situation in Australia.
The Alfred neurologist and Monash College analysis fellow Dr Emma Foster will lead the examine with Professor Alessandro Zagami from Sydney’s Prince of Wales Hospital and the College of New South Wales.
“There aren’t any sturdy, population-based research that seize prevalence and burden of migraine in Australia,” Dr Foster says. “A devoted examine is required to seize information throughout the entire nation.”
The analysis workforce has designed a questionnaire that can be mailed to twenty,000 randomly chosen households in Victoria and New South Wales. To make sure statistical validity, solely these invited could be included at this stage.
The questionnaire asks contributors whether or not they expertise migraine, and if sure, how a lot it impacts them, and what therapies they use. Their responses will inform the design of a future, nationwide mailout examine. The researchers want to encourage all those that obtain a questionnaire to take part, together with these residing with out migraine. The questionnaire takes between 5-Quarter-hour to finish.
“This pilot examine will present essential info to information the design of a future, nationwide examine, deliberate for 2024, that may comprehensively seize migraine prevalence, burden, and remedy gaps,” Dr Foster mentioned. “These crucial information will direct future healthcare priorities, enhance entry to therapies, and produce impactful change to people, their households, and our communities.”
Outcomes are anticipated later this yr.
Extra info could be discovered at monash.edu/ahead-study
(AHEAD) – A Pilot Research
Lead investigator: Dr Emma Foster (The Alfred, Monash College)
Senior investigator: Prof Alessandro Zagami (Prince of Wales Hospital, UNSW)
Co-investigators: Dr Ben Chen, Ms Christine Cormack, Prof Claire Wakefield, Prof Zanfina Ademi, Dr Elspeth Hutton
Skilled enter from: Prof Timothy J Steiner
Funders: Mind Basis, Lundbeck, Prince of Wales Hospital Basis
Drawback. Worldwide, roughly 1.04 billion folks dwell with migraine. And globally, migraine and medicine overuse headache are the second main reason for years lived with incapacity. Sadly, sturdy migraine and medicine overuse headache information from the Australian basic inhabitants are utterly missing. Australian research are desperately wanted to find out the precise extent of what’s doubtless a serious public well being situation.
Answer. This cross-sectional pilot examine entails a mail drop of examine invites to twenty,000 households throughout Victoria and New South Wales. Eligible house owners can be invited to self-complete a 15-minute questionnaire both through returning the included paper-based questionnaire booklet through reply-paid submit, or by finishing the questionnaire through a safe on-line platform on their cell phone, pill, or laptop. Responses are nameless and participation is totally voluntary
Significance. This pilot examine will function an proof base to draw vital funding from trade, establishments, and authorities grant-giving businesses for the primary Australia-wide, complete examine of migraine epidemiology. The preliminary information gathered throughout this examine will go in the direction of closing the biggest information hole in Australian migraine medication. This analysis is crucial for informing pointers concerning analysis, directing future healthcare priorities, incentivising funding in new therapies, bettering equitable entry to current and new therapies, and shaping healthcare pathways that may convey impactful change to people, their households, and our communities.
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